PFAC toolkit resources

Readiness

• Hospital self-assessment
• Leadership assessment

Start-up planning

• Start-up toolkit (American Hospital Association)
• Start-up toolkit (BJC HealthCare)
• Start-up toolkit (Chicago Hospital Association)
• Start-up toolkit for medical practices
• Start-up toolkit for pediatric practices
• Sample: Timeline
• Sample: Initial meeting agendas
• Checklist: Pre-plan for your PFAC
• Checklist: Initial phase

Start-up documents

• Creating vision/mission statement
• Creating bylaws
• Creating charter
• Sample: Compact
• Sample: Handbook
• Sample: Confidentiality statement for advisors
• Health Care Acronyms
• Health Care Glossary

For advisors

• Checklist: Am I ready to become an advisor?
• Guide: How to be an effective patient & family advisor
• Tips: Being an effective member
• Sample: FAQ for potential patient and family advisors
• Checklist: Readiness to Partner with Patient and Family Advisors (for organization representatives on PFACs)

Recruitment

Getting started

• Toolkit: Recruit and onboard patient and family members
• Toolkit: Patient family advisor recruitment (including background on person-centered care)
• Checklist: Patient and family advisor recruitment
• Description: Role of patient/family members on PFAC
• Description: Roles for patient/family advisors and PFACs and other engagement opportunities

Outreach

• Worksheet: Recruitment planning
• Template: Slideshow presentation for recruitment
• Brochure: Become a patient and family advisor
• Sample: Recruitment flyer (tear-off)
• Sample: Recruitment flyer (1)
• Sample: Recruitment flyer (2)
• Sample: Discussion questions for prospective members
• Sample: Interview questions for prospective members
• Sample: Advisor application form (1) 
• Sample: Advisor application form (2)
• Sample: Offer letter
• Sample: Regret letter

Diversity

• Guide to improving diversity in patient and family advisory councils (preliminary)
• Strengthening the diversity and role of Patient and Family Advisory Councils (action steps)

Quality and safety

• Framework for partnering with patients/families to improve quality and safety
• Examples: Patient/family role in initiatives
• Guide: Bringing OpenNotes to an organization
• Evaluating PFAC progress on impact on safety

Education

• Resource: Guide for hospital and health system leaders
• Handbook: Working with patient and families as advisors
• List: Characteristics of effective PFACs
• Recommendations: Educating health care leaders on patient/family advisors
• Recommendations: Partnering with patients and families for a patient-centered health care system
• Study: Key learnings for strengthening partnerships
• Systemic review: Impact of patient advisors on health care outcomes
• Report: Strategically advancing patient and family advisory councils in New York State Hospitals
• Commentary: Training patient and family storytellers and patient and family faculty

Organizations of interest to PFACs

• Institute for Patient- and Family-Centered Care
• The Beryl Institute